At Issue: Families and communities face a phenomenon for which there is no precedent or clearly defined path for resolution.
Life-saving medical advances made in the last decade save more children.
The state of Georgia has no organized plan in place to track or meet the special life-care needs of its estimated 6,000+ medically fragile pediatric population, or to meet the resource needs of families caring for them.
Lacking adequate support and resources, biological families find it increasingly difficult to keep their medically fragile children.
The Situation: Families and communities are unprepared to provide the higher, specialized level of care these children require.
This epidemic is exploding throughout our society without a supporting infrastructure of resources or community-based training programs to address the issue.
The State of Georgia has no organized plan in place to track or meet the special life-care needs of its estimated 6,000+ medically fragile pediatric population.
Families or caregivers lack resources to meet their complex care needs.
Many give up their children because they feel they have no other choice.
More than 2,000 medically fragile children are in Georgia’s foster system.
The Consequences: Medically fragile children languish forgotten in Georgia hospitals and adult nursing homes because there is no where for them to go.
Today, approximately 1,200 medically fragile children live for months, and in some instances, for years, in hospitals and adult nursing homes.
In State custody, medically fragile children are placed in foster homes with families woefully unprepared or properly trained to care for them.
As a result, medically fragile children often move from foster home to foster home, then back to hospitals or adult nursing facilities, spending years bouncing ‘around the system.’
Children already struggling to cope with health deficits cannot handle the emotional toll their continued displacement causes.
Resulting behaviorial instabilities make finding permanent homes even more difficult.
Losing continuity of care deteriorates their already fragile conditions.
Greater health care issues arise, causing more hospital admissions and escalating direct-care costs.
These precious, innocent children are at greater risk for fatal outcomes.
Dream House Solution: Specialized training and resources allow children to be placed in more appropriate settings.
Laura Moore recognized more than a decade ago that Georgia’s medically fragile children and their families need resources that prevent prolonged institutional care.
Via the Dream House Family For Keeps™ Transition Care Program we prepare and enable families to care for these children in their own homes.
We need help getting the word out to empower communities to keep these families together!
Benefits and Outcomes: The Dream House unique Transition Care Model yields fewer care mistakes, and has allowed more medically fragile children to remain in stable home settings